Teen Advocates Lobby and inspire Rare Disease Day

sick chick, only 16 years, has done more for the promotion and good for the world that most of us do in life. I met her this year while en route to Capitol Hill to educate and advocate for Rare Disease Day.

In this horrible, depressing degradation of our common and the need to care for one another election cycle, it has been a relief to learn about what people are doing to care for each other.

I have been following the Chick Sick of writing and defending several years and have learned a lot from the rare disease community. I had my first contact with her for one of my patients, "Rose", which has a progressive mitochondrial disease, and whose struggles counted in 2014.

Both girls became ill with severe pain as a major symptom, as well as intermittent weakness. Sick Chick was only 10 years old. She described her symptoms,

"Imagine a pain so intense that governs his life

Imagine how it feels to have a million suns burning under the skin or feeling that lightning is rolling through your body 24/7

Imagine the feeling all this pain at once and that doctors tell you you're making ...

I am 12 years old and not have to imagine. "

She became unable to walk, and went to specialized centers around the country in search of a diagnosis and care. Both she and Rose were "accused" of having a psychiatric condition called conversion of the cause of his pain syndrome. Describe their ordeal in "You have pain? Are you crazy?" And barbarism (in my opinion) way some specialists treat these

Related eXtra/News news News Today STYLE